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A latest interview from June 2021 chatting with Ira Pastor. Talking about my condition, what has happened since the last documentary & starting my charity GoPI3Ks to help support those living with the same overgrowth as myself.
The charity I set up.
In 2017 after hearing from doctors that more & more people were being diagnosed with PROS (PIK Related Overgrowth Spectrum) it felt the right time set up a charity for those living with & affected by PROS.
So after my hours of fundraising, reading & setting out our constitution we were ready to send this to the Charity Commission.
On the 14th December GoPI3Ks became a registered charity.
Please click the LEARN MORE button to take you to the dedicated website for GoPI3Ks.