Supporting people with overgrowth syndromes
WELCOME TO MANDYSELLARS.COM
Me in 2014
SOME OF YOU MAY KNOW ME FROM NEWSPAPERS YOU HAVE READ, PICTURES YOU HAVE SEEN & DOCUMENTARIES YOU HAVE WATCHED. THIS HOWEVER, IS THE ONLY PLACE YOU CAN LEARN UP TO DATE INFORMATION!
My most recent documentary entitled: 'SHRINKING MY 17 STONE LEGS'. was aired on Monday 18th of February 2013. It hasn't as yet made it to You Tube, but hopefully it is just a matter of time. Some of my earlier documentaries can be found at the bottom of my media appearances page.
I have recently filmed a small piece (10-15 mins) as part of a hour long documentary for Discovery Channel that should be on air at the end of the summer. I will post dates once I know more.
I finally have a diagnosis for my condition, it is a single letter mutation in the PIK3CA gene, this has caused the overgrowth in my legs & foot. I was the first person in the world to be discovered with this particular type of gene mutation.
So now I can say that I have 'SELLARS SYNDROME'.
All this was down to two amazing doctors who took the
time to research my condition.
Subsequently they were able to offer me treatment
in the form of a tablet that has amazingly started to
shrink the fatty tissue in my legs & foot.
Since I started the treatment in 2012 I have lost around 4 stone,
this mainly from my effected areas of my legs and foot,
plus no side effects which is always a bonus.
Me with my 'magic pill'
For more information on this condition and Segmental Overgrowth, please see my section on Segmental Overgrowth & PIK3CA Gene Mutation & you can also go to a website that I have designed specifically for this condition, the address is: www.gopi3ks.com/
HELP FOR OTHERS:
If you or anyone you know would like any help in finding out more about any overgrowth condition you or they maybe living with
then please contact me on this email address:Mandy's email address
Thank you for taking the time to search for my website, and I hope that you enjoy looking round.