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Supporting people with overgrowth syndromes

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WELCOME TO MANDYSELLARS.COM

 

Me in 2014

 

           SOME OF YOU MAY KNOW ME FROM NEWSPAPERS YOU HAVE READ, PICTURES YOU HAVE SEEN & DOCUMENTARIES YOUHAVE WATCHED. THIS HOWEVER, IS THE ONLY PLACE YOU CANLEARN UP TO DATE INFORMATION!

 

     My most recent documentary entitled: 'SHRINKING MY 17 STONE LEGS'. was aired on Monday 18th of February 2013. It hasn't as yet made it to You Tube, but hopefully it is just a matter of time. Some of my earlier documentaries can be found at the bottom of my media appearances page.

 

                                          HEALTH INFORMATION:
         I finally have a diagnosis for my condition, it is a single letter             mutation in the PIK3CA gene, this has caused the overgrowth             in my
legs & foot. I was the first person in the world to be                    discovered with this particular type of gene mutation.
         So now I can say that I have 'SELLARS SYNDROME'.


         All this was down to two amazing doctors who took the
         time to research my condition.

Here is me with Dr Semple & Dr Parker

 

         Subsequently they were able to offer me treatment
         in the form of a tablet that has amazingly started to
         shrink the fatty tissue in my legs & foot.
         Since I started the treatment in 2012 I have lost around 4 stone,
         this mainly from my effected areas of my legs and foot,
         plus no side effects which is always a bonus.



Me with my 'magic pill'

         For more information on this condition and Segmental                           Overgrowth, please see my section on Segmental Overgrowth &          PIK3CA Gene Mutation & you can also go to a website that I                  have designed specifically for this condition, the address is:                                                www.gopi3ks.com/

                                                            

                                                            HELP FOR OTHERS:

         If you or anyone you know would like any help in finding out more          about any overgrowth condition you or they maybe living with
         then please contact me on this email address:
Mandy's email address

 


         Thank you for taking the time to search for my website, and                         I hope that you enjoy looking round.